I am guest blogging tonight as Mark is staying in hospital overnight. He says he trusts me so here goes……
Today was his procedure to fit a PEG so that he can take in nutrition when/if his mouth gets too sore. As his mouth has gone from fine to very sore in 48 hours, this seems a realistic idea – but I think he would rather he didn’t have to have one.
Yesterday we realised how much of a team there is in oncology when Mark was helped by Dr’s, the nutritionist, our lovely MacMillan nurse Margaret and the wonderful chemo nurse who looks after, in her words, ‘my Mark’ (also called Margaret I think).
Today I was humbled by Beverly who prepped Mark for his procedure. She was friendly. and funny, and realistic, and positive. She was helped by a student nurse called Faith who had to ask Mark lots of questions – many of them were obvious, but we were rather thrown when she asked Mark if he had any pets at home. However, I think Faith was more thrown when we said, yes a cat and 2 guinea pigs! I don’t think she had encountered that reply before and we all had to work out how to spell ‘guinea’!
I won’t go in to much detail about him having the PEG fitted – he can do that if he chooses, but needless to say it wasn’t pleasant – and I wasn’t even there. Anything that involves sedation is problematic for Mark, but he seemed OK after – if a little sore. He may feel more sore once the pain relief wears off. Writing ‘a little sore’ reminds me of those articles which list typical British understatements such as ‘It’s a bit nippy’ (It’s below freezing and I may get hypothermia), ‘It’s no bother’ (this is the most inconvenient thing I’ve ever been asked to do)………..
It feels strange that Mark is in hospital and I cannot pop over to see him this evening for half an hour as it’s so far away, although I am beginning to remember how to drive ‘London style’, something I had to do daily whilst teacher training. Even Mark complimented me on my driving this morning. Anyone who has ever had the pleasure of Mark as a passenger in a car will know that this is possibly the highest praise that he can give.
Whilst on the subject of praise, I will take the opportunity to end on a slushy note, and let everyone know how incredibly proud I am of the way that Mark is approaching what at times must be overwhelming. I love him very much.
Mark – I hope this meets with your approval. Sleep tight, love from me and the boys xxxxxxx