All done for another day. Chemo this morning from 1000 and then radiotherapy. Had a really long listen to my MacMillan nurse, dietition and doctor dan as they were a bit worried. The pain in my mouth has got to be too bad to eat anything meaningful. They told me off for trying to be too tough and instead let them know what painkillers I really needed. I did not know/ or think I was being tough but just like my dad I do not like to make a fuss. Hopefully new regime of mouthwashes, painkillers, creams, gels. lotions will allow me greater amounts of sleep and make it possible to get food past the burned mouth.
I started to think of some more things I would like to eat when I can again – habas on olive oiled oiled bread sounds good…probably best in the sun.
Up early tomorrow to get into hospital for PEG fitting. Need to have breakfast at 0430 so that I do not contravene nil by mouth instructions. Will be taught to feed and drink through the stomach tube which will undoubtedly help with hydration which is also tough going. Simple things that one takes for granted every day are so hard at the moment. The pain will apparently continue to increase right up until the end of week 6 – it is expected that I will be on some kind of morphine by the end. It is expected that how I feel now will be my pain level in week 9….so this is what Christmas will be like….no turkey! Been given protein shakes on prescription and they will be the bulk of my food for the next umpteen weeks.
The amount of medicine is growing. Here is the picture of my current medicine box on my bedside table:
It does not include my anti sickness and steroids yet!