After a typically appalling stay at the hospital I am at home. Medication and eating was tough whilst on the ward. I collapsed on the Friday night with teams of docs and nurses running to my aid. Real problems with my eating and drinking. Hopefully all sorted out now with my tube. Been fed through it today and whist it feels very strange it takes the pressure off trying to get so many calories and liquid through my mouth. It takes about 30 mins to get all the medicines, water and feed through. For the first time I am not wolfing down my food.
All a little bit sorry for the situation in which I find myself. My mouth feels waxy and furry and does not seem, even with the wash, to become fresh. Night time is giving me about three hours sleep before dryness makes me need to get up for washes in the mouth. At least it also numbs the pain of the ulcers and burned mouth. At least I am now half way through. Every treatment that I now have is one less than I have already done. We are on the last lap….need to kick on.
Might need help with lifts next week guys so please volunteer to Ali! Cheers to all.