This weekend has been a testament to the unbelievable person my wife is. She has single handedly guided all of us through our lives whilst doing everything in the world. I know she liked seeing her mum and dad on Saturday. I was appreciative of their company and help when needed.
Thankfully the feeding tube has enabled me to get calories inside and therefore I feel a bit more human in the brain. I continue to be extremely tired,,,only having ventured downstairs once today. There was a major panic and phone calls this morning when my tube got blocked for an hour or so. As I took my medication through it, then granules got stuck. The nurse asked which medicine, we told her, and she said that was one that always got stuck! Will no-one mention this to the manufacturer or indeed PEG users so that they are pre-warned. After laying on my back with a warm flannel rapped around the tube and a small syringe to increase pressure the dam was burst….queue song and bouncing bombs. My mouth continues to be more wrecked and is nothing more than a bead door flapping around my mouth. I worked hard to try and eat normally today and managed half a weetabix (mulched) and some carrot and coriander soup – tasted the coriander but by goodness the mouth tingled. I think it was worth it.
Managed three feeds and various painkillers. Just has one of the stronger ones so feel quite weeeee at the moment. Not looking forward to another trip back to hospital tomorrow but Ali is with me and she makes me feel so much safer. I know she can and does deal with everything. What a lucky boy I am. From tomorrow each treatment is one less to go—we are on a countdown…..tomorrow is 15.