Not sure if I would carry this on but based upon the challenges that I still face every day I think I need to get it out there. Hospitalised at the end of the treatment where my body was telling me that it was close to taking no more. The thought of facing the journey to cause more pain was not going to happen. I rest my case with hospitals and their potential for individual care on this visit. Soulless, dull, numbing, noisy. overcrowded, under staffed…..
Got home and then had a Sunday before going back to the consultant again. Over the past week or so the energy that I have to do things has increased slightly although there are still days when I need to sleep lots and no days yet with no naps. I have been able to spend more time in the company of the children downstairs although not a massive amount. This is very encouraging. I have needed to be put on an evening feeding regime with a pump as I am finding it a difficulty to eat all the calories I need. Mainly due to being sick so often. It has definitely helped,
The biggest problem is the mucus which has the effect of disrupting my sleep and make me sick. It is this symptom of the treatments that I want gone. No-one seems quite sure when it will end but I thought they said improvements after 10 days-ish..well we are there today so I am expecting. Hope you are all well and looking forward to a good Christmas.